Dermatologic Data From the Global Burden of Disease Study 2019 and the PatientsLikeMe Online Support Community: Comparative Analysis

Authors

Mindy D. Szeto, University of Minnesota
Lina Alhanshali, SUNY Downstate Medical Center
Chandler Rundle, Case Western Reserve University
Madeline J. Adelman, University of Colorado
Michelle Hook Sobotka, Abrazo Health NetworkFollow
Emily Woolhiser, Kansas City University
Jieying Wu, Rocky Vista University
Colby L. Presley, Lehigh Valley Health Network
Jalal Maghfour, Henry Ford Health
John Meisenheimer, University of Colorado
Jaclyn B. Anderson, Brown University
Robert P. Dellavalle, University of Minnesota

Document Type

Article

Publication Title

JMIR Dermatology

Abstract

The Global Burden of Disease (GBD) study aims to characterize the worldwide prevalence and morbidity of major diseases, while PatientsLikeMe (PLM) is an online community providing patient-generated insights into lived experiences; for dermatologic conditions, quantitative comparisons of GBD and PLM data revealed expected demographic differences but also notable correlations, highlighting their potential as complementary data sources elucidating unmet patient needs and priorities.

DOI

10.2196/50449

Publication Date

12-11-2024

Keywords

DALY, GBD, Global Burden of Disease, PLM, PatientsLikeMe, comparative analysis, demographics, dermatology, disability-adjusted life year, forums, internet, lived experience, online support communities, prevalence, social media, users

ISSN

2562-0959

Recommended Citation

Szeto MD, Alhanshali L, Rundle C, Adelman MJ, Sobotka MH, Woolhiser E, Wu J, Presley CL, Maghfour J, Meisenheimer J, Anderson JB, Dellavalle RP. Dermatologic Data From the Global Burden of Disease Study 2019 and the PatientsLikeMe Online Support Community: Comparative Analysis. JMIR Dermatology. 2024; 7. doi: 10.2196/50449.